Almost by definition, rare diseases are so unusual information about them isn't readily accessible—not only for patients chasing a diagnosis but for the physicians trying to help them.
HRA Pharma wants to change that for at least one rare disease, Cushing's syndrome, with the debut of a one-stop information hub for healthcare providers. The rare disease, caused by tumors in the pituitary or adrenal glands, affects women more than men and typically begins in patients over the age of 40. Between 700,000 and 2.4 million new cases are diagnosed every year.
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