Bye Bye Copaxone!!!

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Anonymous said:
If I had MS, I'd go on Gilenya. end of story. But I would still cash my paycheck from Teva with pride.
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That is the beauty of it all, you have choices. The choices suck, but you have choices.

Of course you are not a Teva rep, but that is besides the point. I hope you never get MS and have to look at all the crappy options and pick the least of the evils.

All have their positives, negatives, risks, etc. None are ideal.

You reps are a hoot. You have no regard for what people with MS must endure, you just want to bluster like a bunch of hyper-hormonal teenage boys. Most of you probably couldn't make a choice if you had MS because you are so wrapped up in your own smack.
 






Patient1 said:
That is the beauty of it all, you have choices. The choices suck, but you have choices.

Of course you are not a Teva rep, but that is besides the point. I hope you never get MS and have to look at all the crappy options and pick the least of the evils.

All have their positives, negatives, risks, etc. None are ideal.

You reps are a hoot. You have no regard for what people with MS must endure, you just want to bluster like a bunch of hyper-hormonal teenage boys. Most of you probably couldn't make a choice if you had MS because you are so wrapped up in your own smack.
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I am a Teva rep but who the f*ck are you????? Your obnoxious and a total know-it-all! Go f8ck yourself!
 






Anonymous said:
I am a Teva rep but who the f*ck are you????? Your obnoxious and a total know-it-all! Go f8ck yourself!
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I am a patient and you are illiterate . You apparently can't say anything constructive so you resort to obnoxious garble. You can't even spell curse words correctly. Here's a hint, it rhymes with "duck". Your mother must be so proud!
 












Liberation therapy to correct CCSVI has been done on over 10,000 patients world wide. you guys like to do the math when it comes to how your competition is affecting your bonus.
I recommend you look again at what may be affecting all pharma's profit this year and next.
There's a new kid in town and he has bad news for you guys. I have more news for you, people with MS have begun to see through the smoke and mirrors that is Pharma and quiting your drugs anyway. Studies say they are not much better than placebo and thats with pharma in controll of how they present the numbers.
 






Anonymous said:
Liberation therapy to correct CCSVI has been done on over 10,000 patients world wide. you guys like to do the math when it comes to how your competition is affecting your bonus.
I recommend you look again at what may be affecting all pharma's profit this year and next.
There's a new kid in town and he has bad news for you guys. I have more news for you, people with MS have begun to see through the smoke and mirrors that is Pharma and quiting your drugs anyway. Studies say they are not much better than placebo and thats with pharma in controll of how they present the numbers.[/QUO

Oh yeah studies say not much better than placebo name one. That'll be big news to the thousands that have had their lives stabilized over the years. Sorry you re so bitter and frustrated none work for you but its not the pharmas co fault you have MS. Maybe CCSVI will have a delusional or placebo effect that may help you. Seems like its more important for the pharma co to fail or lose than you to find peace of mind.
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are you really so dim that you don't know it's the $10 billion a year that pharma makes that is delaying/hiding credible evidence in support of the simple procedure to correct CCSVI
 






Anonymous said:
Do you think Reps go on patient web sites to learn about selling drugs? Do you think doctors come on Cafe Pharma to learn about drug choices? I know you said you were in the industry so you should know better than to come on here for patient information or to take anything written here seriously.

My point is this:
If you are in fact a patient you should NOT be on these boards. This is a web site for Reps to vent, argue, debate, and have some fun relieving stress messing with each other. This is NOT A PATIENT EDUCATION WEB SITE so I would suggest you leave and not return because there is nothing here for you. This is not to be mean, but you should know better and show more intelligence than taking anything said here to heart.
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I too am a 'recovering MSer' and these boards seem to be more of a place where reps come to vent, argue and debate their money loses or bonuses.

You all should be open minded and learning from patients' experiences first hand.

I took copaxone for 8 years. It destroyed my skin. I am indented like a pin cushion. I stopped taking it 3 months before I was treated for CCSVI. Copaxone did NOT regress my disease. I actually got worse in those 8 years. Proper blood flow and drainage gave me BACK things I had not had in decades!

Think about what you are selling and consider the patients at the end of the injection needle. We have brains and feelings.
 






Anonymous said:
you can check this report..
http://www.themcfox.com/multiple-sclerosis/ms-drugs/copaxone/copaxone-effectiveness.htm
..then compare to your own company's numbers. the difference is so small that it could easily be a small bias that make the difference. I was on this poison for 3 years do ya think you know more about it then me. think again fool.
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You're absolutely correct the Copaxone efficacy data is the worst, an every day injection lipoatrophy and for what? A treatment effect not much better than placebo. Their own study shows it! However Copaxone is not the only game in town. High dose inf is far more statistically significant in terms of efficacy and is far better tolerated than led to believe as well as other advantages. Copaxone marketing does a feverish job of exaggerating inf "side effects" in order to scare potential patients and gullible neuros. In the hopes of circumventing their own problems and short comings and anyone like you who'll do real objective research and expose the lies.
 






Anonymous said:
You're absolutely correct the Copaxone efficacy data is the worst, an every day injection lipoatrophy and for what? A treatment effect not much better than placebo. Their own study shows it! However Copaxone is not the only game in town. High dose inf is far more statistically significant in terms of efficacy and is far better tolerated than led to believe as well as other advantages. Copaxone marketing does a feverish job of exaggerating inf "side effects" in order to scare potential patients and gullible neuros. In the hopes of circumventing their own problems and short comings and anyone like you who'll do real objective research and expose the lies.
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I don't know. Copaxone has been very effective for me. I can only speak from my experience, but I've been taking copaxone for more than 10 years and I have not experienced disease progression. I have had only two minor relapses that I recovered from quite nicely.

For me, it has been life saving.

I can deal with the daily injection and the lipoatrophy. It seems a small price to pay for the positive experience I've had with the drug.

Unfortunately, what works for some simply do not work for others. That seems to be a simple fact.
 






Anonymous said:
I too am a 'recovering MSer' and these boards seem to be more of a place where reps come to vent, argue and debate their money loses or bonuses.

You all should be open minded and learning from patients' experiences first hand.

I took copaxone for 8 years. It destroyed my skin. I am indented like a pin cushion. I stopped taking it 3 months before I was treated for CCSVI. Copaxone did NOT regress my disease. I actually got worse in those 8 years. Proper blood flow and drainage gave me BACK things I had not had in decades!

Think about what you are selling and consider the patients at the end of the injection needle. We have brains and feelings.
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I am very glad you found CCSVI helpful.

I just hope it is a permanent solution and not temporary. Since I am not progressing, I haven't considered it at this time. I am watching closely for the research results. If there is merit to the longevity of the improvement, I will strongly consider investigating whether or not I have an issue with my veins.

Best of luck.
 






I'm an MS patient also. By the way, a lot of patients read this forum, like it or not. You can only get so far reading the prescribing information and clinical trial papers. It really helps to see what the people on the ground selling the stuff have to say. Frankly, I'm not impressed by the professionalism of the pharma reps who post here.

I was dx'd with rrms 8 years ago, tried another therapy at first and then used copaxone for the last 4. I'm male, have never had lipoatrophy (most men don't get this side effect of copaxone). During the 4 yrs I've been on it I've never had a relapse (versus 1/year before going on it), and MRI shows no new lesions (versus 2-3 new ones/year before going on it).

By far the worst side effect is the IPIRs. I get one or two a year. 15 mins of intense palpitations, flushing, and vomiting, followed by 2 hrs of aches, chills and intense shivering. Nasty ride. Teva and/or SS really should go study this. It sucks.

I work full time, run 15 miles a week and do weights and martial arts. I do 100 pushups a day. I'm hardly "disabled" by having ms. Frankly for me - ms is a nuisance, not a disability.

I give substantial credit for my present health to copaxone. Since I'm a responder to it I'm surely not moving to any oral drug with unknown/potentially worse side effects any time soon. Not after the PML debacle. It sucks Teva keeps raising the price of it - its now $40k per year, 2x what it was when I started on the drug. I'm well insured, otherwise I wouldn't be able to afford this drug.
 






Hello All

I personally have never taken any of the "MS drugs" because there is no logic behind suppressing the immune system rather to regulate which no RX does.

I take herbs and study alternative medicine

I would like to point out that Copaxone which contains Omegas glutathione and Amino acids which do help regenerate myelin and help with absorption for vitamins and minerals and also blood flow. I am not sure if anyone knows about the fact that many MS patients that become pregnant while pregnant improve which has also helped people with vein problems which supports the CCSVI treatment theory. The other RX that has help some MS patients is LDN Low Dose Naltrexone which also help blood pressure regulation which also supports the CCSVI theory.

I hope other MS patients find this information helpful
 






White Wolf said:
Hello All

I personally have never taken any of the "MS drugs" because there is no logic behind suppressing the immune system rather to regulate which no RX does.

I take herbs and study alternative medicine

I would like to point out that Copaxone which contains Omegas glutathione and Amino acids which do help regenerate myelin and help with absorption for vitamins and minerals and also blood flow. I am not sure if anyone knows about the fact that many MS patients that become pregnant while pregnant improve which has also helped people with vein problems which supports the CCSVI treatment theory. The other RX that has help some MS patients is LDN Low Dose Naltrexone which also help blood pressure regulation which also supports the CCSVI theory.

I hope other MS patients find this information helpful
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Brilliant analysis Doctor Any study to back the significance of this Copaxone theory? Of course not! Typical
 






White Wolf said:
Hello All

I personally have never taken any of the "MS drugs" because there is no logic behind suppressing the immune system rather to regulate which no RX does.

I take herbs and study alternative medicine

I would like to point out that Copaxone which contains Omegas glutathione and Amino acids which do help regenerate myelin and help with absorption for vitamins and minerals and also blood flow. I am not sure if anyone knows about the fact that many MS patients that become pregnant while pregnant improve which has also helped people with vein problems which supports the CCSVI treatment theory. The other RX that has help some MS patients is LDN Low Dose Naltrexone which also help blood pressure regulation which also supports the CCSVI theory.

I hope other MS patients find this information helpful
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This sounds like a rep doing some off label promoting. I think the FDA should be looking at this.
 












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