Acthar Price Increase $23K a Vial

Quote
You should communicate with your family more. Or are you the embarrasing uncle who gets drunk at the family reunions every year. In any case, we still get our 23k per vial and your family gets what they need. Stop bitching about things and let me go see if my stock options have increase in value over the past 5 minutes.

Kind regards,

The Questcor BOD
 






Anonymous said:
You'll be glad to know, then, as a follow up to the story you posted above, the family was able to get the drug through insurance for a $25 copay (yes, that's 100 quarters). Link below...
http://www.kktv.com/home/headlines/9606682.html
Click to expand...

HOWEVER, CuraScript did NOT follow through with their promise. They sent a letter stating it would be $25 ONLY if the insurance paid them, which they won't. We are back to square 1 raising money to pay the Questcor SOBs money to save Tyler's life.
 






Anonymous said:
You should communicate with your family more. Or are you the embarrasing uncle who gets drunk at the family reunions every year. In any case, we still get our 23k per vial and your family gets what they need. Stop bitching about things and let me go see if my stock options have increase in value over the past 5 minutes.

Kind regards,

The Questcor BOD
Click to expand...

I do communicate with my family. However, I have been busy with things FAR more important than watching arrogant people post on here. You can use profanity, but it still doesn't change the fact if the families can't afford it, the child dies. It is a LOT different when it is your child, and not someone elses.
 
























When St Peter gives me the thumbs down and I go sliding into the fiery pits of hell, I hope that I don't come across the incompetent, greedy, hypocrites that call themselves affiliates of questcor. How embarrassing it is to have had my professional reputation tarnished by such blatant corruption which I still must answer for even though I have moved on to a different organization whose own petty issues pale in comparison to the lump in my throat when recently I had to explain to a former customer that they too could no longer get Acthar for patients in need because of the hey let's stick a fork up the asses of insurance companies and smile mentality adopted by these wall street wannabes... And we wonder why healthcare in the u s a is so f#$##d up. And boy what a nice line of b s that acthar is expensive. Perhaps if they didnt spend all that dough on video production and expensive wine at last year's p o a they might have had some left over. Drop dead you nitwits.
 






I'm sure St. Peter is still going to give you the "thumbs down" because you are a crook. You steal from your current company by sitting on cafepharma and posting crazy comments at 3 am and not putting in an honest day's work the next day. You're probably drunk or sneaking away from your spouse for some online chats with underage kids. I'm sure you'll sleep it off until 10 or 11, take a shower, make one call, and then call your boss with stories about how great your day is going. That's not a lump in your throat....it's call dry mouth from sucking down a 6 pack of cheap beer and a warm box of wine. Pull your pants up and get on with your life.
 






.How embarrassing it is to have had my professional reputation tarnished by such blatant corruption which I still must answer for even though I have moved on to a different organization whose own petty issues pale in comparison to the lump in my throat when recently I had to explain to a former customer that they too could no longer get Acthar for patients in need because of the hey let's stick a fork up the asses of insurance companies and smile mentality adopted by these wall street wannabes...[/QUOTE said:
88 words in this boring run-on sentence. Damn, throw in a comma or a period somewhere if you expect anyone to get through this crap.
But seriously, I hope your professional reputation isn't tarnished to point that you can't respectfully bring lunch to your future offices. Good luck.
Click to expand...
 






Anonymous said:
88 words in this boring run-on sentence. Damn, throw in a comma or a period somewhere if you expect anyone to get through this crap.
But seriously, I hope your professional reputation isn't tarnished to point that you can't respectfully bring lunch to your future offices. Good luck.
Click to expand...

TG, go back to your hole and shut your trap. Your husband is in the middle of drilling some flight attendant during his layover.
 






My beautiful grand-daughter, Zoe, has now been denied her medication
Acthar ACTH.
Here is what happened and is going to be an on-going saga of trying to
keep her alive.
She has to ave the medication DAILY. OR, her immune system
attacks her brain. Without the medication, this beautiful little girl
will end up a vegetable and die, rather quickly.
The daily medication works. She is 2 and a half and it has been working
VERY well. Apparently Questcor decided that MILLIONS AND MILLIONS was not enough money.
Questcor also did away with the FDA approval for this medication. (MORE MONEY FOR Questcor). Questcor increased the price of the medication to like $65,000.00 per MONTH, vs the $6,500.00 it cost before.. (more money for
Questcor) Fired a great deal of their employees. (uh,more money Questcor). Said it wasn't worth it, cause they weren't making enough money.
There is NO other company that makes the medication. No generic.
And IMAGINE THIS, now the Insurance Company will not pay the ENORMOUS
amount of money Questcor is charging for this drug. And they say they don't
have to, because NOW, it is not FDA approved. (although it HAS BEEN,
before this black-hearted company changed the rules, raised the price
and said so what.....too bad, so sad.
That means only those people who can afford the $65,000.00 a MONTH Price tag are allowed to live, while this company reaps a 1000 PER CENT PROFIT,
at the expense of young children, including my beautiful granddaughter.
Why has this cold-black-hearted opportunistic company decided their profits are more important than the life of my granddaughter? She, at least is an innocent.
IF THIS MEDICATION SAVES THE LIFE OF JUST ONE CHILD, IS IT NOT WORTH
IT??? WHAT KIND OF DEPRAVED MURDEREROUS, GREEDY, MONEY HUNGRY COMPANY WOULD DO THIS TO INNOCENT CHILDREN? HOW CAN THESE PEOPLE SLEEP AT NIGHT????????? Look at themselves in the mirror?

Not to mention the insurance company, who WILL NOT pay for the medicine
either. (at the new way-inflated rate.) the insurance company decided
to give my granddaughter one month's supply (three vials), but would
only give her two of them so they have ONLY a 2 1/2 week supply of this daily med. Obviously we, nor my son are able to pay $65,000.00 a month to keep this beautiful, beautiful, darling, funny, very intelligent child alive.
My son and daughter-in-law are SICK over this. (and she's pregnant and
NOT feeling well herself) They have two older children 6 and 5. Medical
bills that will NEVER be paid off, they are so high. They struggle on a
daily basis. Not only are they helpless at this point, but my husband
and I cannot do one stinking thing to help/change this situation.

THE WHOLE POINT IS MY GRANDDAUGHTER IS BEING DEPRIVED OF MUCH NEEDED MEDICATION AND HAS BEEN GIVEN A DEATH SENTENCE BY QUESTCOR. SHE NEEDS THAT MEDICATION TO SURVIVE. HOW CRUEL AND INHUMANE. WITHOUT A DOUBT THERE WILL BE A SPECIAL PLACE IN HELL FOR THE PEOPLE RESPONSIBLE FOR THIS ACTION. AND A LOVELY CHILD, WITH MUCH POTENTIAL WILL BE SENSIVELY HARMED BEYOND REPAIR.
See for yourselves...
http://www.zoecadence.homestead.com/
 






Cathedra said:
My beautiful grand-daughter, Zoe, has now been denied her medication
Acthar ACTH.
Here is what happened and is going to be an on-going saga of trying to
keep her alive.
She has to ave the medication DAILY. OR, her immune system
attacks her brain. Without the medication, this beautiful little girl
will end up a vegetable and die, rather quickly.
The daily medication works. She is 2 and a half and it has been working
VERY well. Apparently Questcor decided that MILLIONS AND MILLIONS was not enough money.
Questcor also did away with the FDA approval for this medication. (MORE MONEY FOR Questcor). Questcor increased the price of the medication to like $65,000.00 per MONTH, vs the $6,500.00 it cost before.. (more money for
Questcor) Fired a great deal of their employees. (uh,more money Questcor). Said it wasn't worth it, cause they weren't making enough money.
There is NO other company that makes the medication. No generic.
And IMAGINE THIS, now the Insurance Company will not pay the ENORMOUS
amount of money Questcor is charging for this drug. And they say they don't
have to, because NOW, it is not FDA approved. (although it HAS BEEN,
before this black-hearted company changed the rules, raised the price
and said so what.....too bad, so sad.
That means only those people who can afford the $65,000.00 a MONTH Price tag are allowed to live, while this company reaps a 1000 PER CENT PROFIT,
at the expense of young children, including my beautiful granddaughter.
Why has this cold-black-hearted opportunistic company decided their profits are more important than the life of my granddaughter? She, at least is an innocent.
IF THIS MEDICATION SAVES THE LIFE OF JUST ONE CHILD, IS IT NOT WORTH
IT??? WHAT KIND OF DEPRAVED MURDEREROUS, GREEDY, MONEY HUNGRY COMPANY WOULD DO THIS TO INNOCENT CHILDREN? HOW CAN THESE PEOPLE SLEEP AT NIGHT????????? Look at themselves in the mirror?

Not to mention the insurance company, who WILL NOT pay for the medicine
either. (at the new way-inflated rate.) the insurance company decided
to give my granddaughter one month's supply (three vials), but would
only give her two of them so they have ONLY a 2 1/2 week supply of this daily med. Obviously we, nor my son are able to pay $65,000.00 a month to keep this beautiful, beautiful, darling, funny, very intelligent child alive.
My son and daughter-in-law are SICK over this. (and she's pregnant and
NOT feeling well herself) They have two older children 6 and 5. Medical
bills that will NEVER be paid off, they are so high. They struggle on a
daily basis. Not only are they helpless at this point, but my husband
and I cannot do one stinking thing to help/change this situation.

THE WHOLE POINT IS MY GRANDDAUGHTER IS BEING DEPRIVED OF MUCH NEEDED MEDICATION AND HAS BEEN GIVEN A DEATH SENTENCE BY QUESTCOR. SHE NEEDS THAT MEDICATION TO SURVIVE. HOW CRUEL AND INHUMANE. WITHOUT A DOUBT THERE WILL BE A SPECIAL PLACE IN HELL FOR THE PEOPLE RESPONSIBLE FOR THIS ACTION. AND A LOVELY CHILD, WITH MUCH POTENTIAL WILL BE SENSIVELY HARMED BEYOND REPAIR.
See for yourselves...
http://www.zoecadence.homestead.com/
Click to expand...

As a former employee of this company(I left on my own), I share the same outrage as you do. In the past, Questcor had been a company that really cared about the patients. This is especially true with pediatric patients in need of ACTH. If you asked any pediatric neurologist, 99% of them would have told you the same thing.

However, this company no longer cares about these patients. The drastic price increase is a big part of the problem. The senior leadership is a bigger part of the problem. Their main concern is lining their pockets with proceeds from their hundred's of thousands of stock options they have accumulated. When they say they won't be able to produce the product because of the cost/revenue, they are lying. The previous company that owned the product said the same thing and the FDA stepped in to assure the production.

It comes down to the greed of the decision makers at Questcor. Most of the remaining employees I used to work with are sick about this price increase and blatent disregard for the patient. My suggestion to you would be to talk to NORD (National Organization of Rare Diseases). They are a group that truly cares about patients like your daughter. Best of luck to you and your family. I can only hope and pray that your child gets what she needs.
 






Cathedra said:
My beautiful grand-daughter, Zoe, has now been denied her medication
Acthar ACTH.
Here is what happened and is going to be an on-going saga of trying to
keep her alive.
She has to ave the medication DAILY. OR, her immune system
attacks her brain. Without the medication, this beautiful little girl
will end up a vegetable and die, rather quickly.
The daily medication works. She is 2 and a half and it has been working
VERY well. Apparently Questcor decided that MILLIONS AND MILLIONS was not enough money.
Questcor also did away with the FDA approval for this medication. (MORE MONEY FOR Questcor). Questcor increased the price of the medication to like $65,000.00 per MONTH, vs the $6,500.00 it cost before.. (more money for
Questcor) Fired a great deal of their employees. (uh,more money Questcor). Said it wasn't worth it, cause they weren't making enough money.
There is NO other company that makes the medication. No generic.
And IMAGINE THIS, now the Insurance Company will not pay the ENORMOUS
amount of money Questcor is charging for this drug. And they say they don't
have to, because NOW, it is not FDA approved. (although it HAS BEEN,
before this black-hearted company changed the rules, raised the price
and said so what.....too bad, so sad.
That means only those people who can afford the $65,000.00 a MONTH Price tag are allowed to live, while this company reaps a 1000 PER CENT PROFIT,
at the expense of young children, including my beautiful granddaughter.
Why has this cold-black-hearted opportunistic company decided their profits are more important than the life of my granddaughter? She, at least is an innocent.
IF THIS MEDICATION SAVES THE LIFE OF JUST ONE CHILD, IS IT NOT WORTH
IT??? WHAT KIND OF DEPRAVED MURDEREROUS, GREEDY, MONEY HUNGRY COMPANY WOULD DO THIS TO INNOCENT CHILDREN? HOW CAN THESE PEOPLE SLEEP AT NIGHT????????? Look at themselves in the mirror?

Not to mention the insurance company, who WILL NOT pay for the medicine
either. (at the new way-inflated rate.) the insurance company decided
to give my granddaughter one month's supply (three vials), but would
only give her two of them so they have ONLY a 2 1/2 week supply of this daily med. Obviously we, nor my son are able to pay $65,000.00 a month to keep this beautiful, beautiful, darling, funny, very intelligent child alive.
My son and daughter-in-law are SICK over this. (and she's pregnant and
NOT feeling well herself) They have two older children 6 and 5. Medical
bills that will NEVER be paid off, they are so high. They struggle on a
daily basis. Not only are they helpless at this point, but my husband
and I cannot do one stinking thing to help/change this situation.

THE WHOLE POINT IS MY GRANDDAUGHTER IS BEING DEPRIVED OF MUCH NEEDED MEDICATION AND HAS BEEN GIVEN A DEATH SENTENCE BY QUESTCOR. SHE NEEDS THAT MEDICATION TO SURVIVE. HOW CRUEL AND INHUMANE. WITHOUT A DOUBT THERE WILL BE A SPECIAL PLACE IN HELL FOR THE PEOPLE RESPONSIBLE FOR THIS ACTION. AND A LOVELY CHILD, WITH MUCH POTENTIAL WILL BE SENSIVELY HARMED BEYOND REPAIR.
See for yourselves...
http://www.zoecadence.homestead.com/
Click to expand...


The pain and frustration in your message comes through loud and clear. Please do not take my response as supportive of this insane pricing - it most certainly is not. The most important thing is these kids and, for you, your granddaughter. I want to clarify some of you comments and provide a suggestion.

First, the company never had approval for this product, so it was not removed or taken away for any financial gain. They tried, unsuccessfully to get approval and were denied for unknown reasons earlier this year. This is VERY important, because this has always been reimbursed by insurance as an unapproved drug.

Second, even with the astronomic price increase, it appears that insurance companies are covering the product. There was an article in the Philadelphia paper earlier this week where someone was quoted as saying they are seeing over 90% of claims approved. I realize that this may not be the case with you, however you need to do the following and put your anger and frustration to work on either getting this product approved for your granddaughter or having the company send out product at no charge. Scream and yell about the company all you want - AFTER you accomplish the most important thing.

Insurance companies will, of course, put up a defense and initially deny such a high price. They are hoping you will go away and figure out a way to bankrupt yourself in order to avoid them writing the check. Bottom line, though, is that the cost of this drug - even at this level - is relatively insignificant compared to what is being paid in aggregrate for cholesterol drugs, heart drugs, anxiety meds, antibiotics, etc. It is literally a drop in the bucket. There are only a couple thousand patients, at most, who would need this over the course of a year vs. the tens of millions on these other drugs. So keep up the pressure, contact NORD as the previous poster suggested. Their website is www.rarediseases.org

I wish you well.
 






I'm sorry to hear about the difficult situation that you and your family are facing. I'm sure there are safety nets in place to take care of people in your position. Your efforts will be well spent lobbying your insurer and the people who work on obtaining reimbursement for this product. I would encourage you to avoid your postings on this website because it only invites sarcastic replies and insincere responses. Good luck to you and I hope you are able to get the drug that your granddaughter so desperately needs. Best Wishes!!
 












I am a mom of a little boy with Opsoclonus-Myoclonus Syndrome, OMS. It's a very rare auto-immune disorder. My son has to have an injection of Acthar everyother day. I've talked to the specialist office and there is no other alternative drug to use for my son. I want someone to explain to me how I am going to pay $56,175.00 for two 5ml bottles of Acthar for him. The price is what I was quoted by the pharmacy we have to now use. My insurance is reviewing it now. I've done the math and a single injection for my son is now $1,337.50 a shot. My son has to be on this drug for atleast 1-2 more years. It is completely outrageous to take a drug that used to cost $3,200 (which I thought was outrageous at the time) to $56,175.00. It's just not right.
 












Anonymous said:
I am a mom of a little boy with Opsoclonus-Myoclonus Syndrome, OMS. It's a very rare auto-immune disorder. My son has to have an injection of Acthar everyother day. I've talked to the specialist office and there is no other alternative drug to use for my son. I want someone to explain to me how I am going to pay $56,175.00 for two 5ml bottles of Acthar for him. The price is what I was quoted by the pharmacy we have to now use. My insurance is reviewing it now. I've done the math and a single injection for my son is now $1,337.50 a shot. My son has to be on this drug for atleast 1-2 more years. It is completely outrageous to take a drug that used to cost $3,200 (which I thought was outrageous at the time) to $56,175.00. It's just not right.
Click to expand...

Another happy customer!
 






I have been in the pharmaceutical distribution business for over 24 years. At one time we purchased Acthar for $40.00 a vial from Wyeth, the innovator of the product. You thought $1,600 a vial was low, check that stat out ;-)
 












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