Orkambi parents start ‘buyers club’ to import generic version of CF drug

Orkambi parents start ‘buyers club’ to import generic version of CF drug

Source: 
Pharmaforum
snippet: 

A group of parents in the UK have taken matters into their own hands in an effort to get their children access to Orkambi, the cystic fibrosis drug at the centre of a three and a half year stand-off between the NHS and its manufacturer Vertex.