A few prostate cancer patients visited our Atlanta facility. It keeps me motivated and focused to read this stuff. Happy Easter All:
http://www.healingwell.com/community/default.aspx?f=35&m=2687707
Todd1963
Veteran Member
Date Joined Oct 2008
Total Posts : 1500
Posted Today 9:28 AM (GMT -6)
During the last four months I must admit I got to feeling like I was somebody special. Being treated like a rock star will do that to you. It has been fun and I hope it continues for a while. I love to share my story. I love to encourage and give hope. I have learned so much and have met so many amazing people. The last two trips I took to the manufacturing facilities wers absolutely eye opening. There are so many facets involved in the manufacturing of this vaccine. It boggles the mind. Cells are tracked and tested and retested and quality controlled from the time they are extracted up until the time they are infused. The facilities are impeccable. I would not be afraid to eat off the floor. If I could give one example of the attention to detail it would be this. The backup power system consists of four twelve cylinder diesel engines that power 480 volt 3 phase generators. The maximum window in the event of a power outage to have the backup system up and running is 30 minutes. Average time it takes in reality ( 7 seconds) Fyi one generator could power the entire facility. They have four of them. Nothing is given to chance or taken for granted. I would eat off of the diesel engines. They were spotless. I could go on and on abouut the wonders of the facilities but the most impressive faction of Dendreon is the faculty. I met person after person without exception who believe in what they are doing. From the men and women working in the labs to those who disinfect the floors and walls. Each person there puts the patient first and believes theey are making a difference in the battle we brothers face each day. Did I mention that a year later I feel fantastic. I am not a rockstar. I am not a super hero. The men and women of Dendreon are all the above. I urge myy brothers here at this forum. If you find yourselves in the class of Asymptomatic or mildly symptomatic, Metastatic, Hormone refractory, PCa, fight for Provenge first. I believe it is going to make a huge difference in the battle. I am not a Dendreon Employee. I do not own Dendreon stock. I have nothing to gain by saying this. I just believe in stating the truth when I see it. I got mine and I feel terrific. I want my brothers to get theirs as well. Todd
--------------------------------------------------------------------------------
Dx6/06 age 42 psa3216 bone mets lung mets lymph mets mass growing into bladder
Lupron/Cassodex psa dropped to <0.05 all scans clear on jan. 09
2010/2011 lupron holiday and 6 months d.e.s.
Psa rising 6/11
Bone scan 2/20/12 clearg
cat scan 2/17/12 1 nodule lower lobe right lung 1.5cm square
Completed Provenge therapy June 1st 2012
Restarted cassodex June 5th 2012
Current age 48
Psa irrelevent
Post Edited (Todd1963) : 3/30/2013 1:51:26 PM (GMT-6)
======================================
Sephie
Veteran Member
Date Joined Jun 2008
Total Posts : 1302
Posted Today 10:24 AM (GMT -6)
Todd, so happy to hear what a positive visit you had at Dendreon. I know see Provenge advertised on the TV. Though I know next to nothing about it (except what I've learned from you), it sounds like something very, very promising...not just for prostate cancer but for other cancers as well. Here's to success for you and everyone on Provenge.
PS: You sound terrific...hugs and kisses from The Empire State.
--------------------------------------------------------------------------------
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (solitary focus of posterior extraprostatic extension). Perineural tumor infiltration present. Apex margin, bladder neck and SVs negative. Final Gleason 3+4. PSA 0.0 thru July 2009. August 2009 - 0.1, September 0.3, October 0.0. All PSAs <0.1 since October 2009.
==================================
Todd1963
Veteran Member
Date Joined Oct 2008
Total Posts : 1500
Posted Today 10:43 AM (GMT -6)
Thank you Sephie. I really am doing wonderful. Sometimes it.makes me feel very sad as others are not. My heart aches for all my brothers who are fighting for their lives.. I am sure my time for that fiight will come but for now I am content to simply live mine. I was able tto meet waater guy and jnf.....Aka Terry and Jack in Atlanta and I now have two new friends for life. That was actually the best part of the Atlanta trip. I still feel like not enouugh emphasis is being given to use Provenge A.S.A.P.. after bbecoming refractory. Too many say it is too expensive. bah!!! such a bunch of crap. Add up the cost of Taxatere or zytiga or mdv over a couple years. just saying. Todd
--------------------------------------------------------------------------------
Dx6/06 age 42 psa3216 bone mets lung mets lymph mets mass growing into bladder
Lupron/Cassodex psa dropped to <0.05 all scans clear on jan. 09
2010/2011 lupron holiday and 6 months d.e.s.
Psa rising 6/11
Bone scan 2/20/12 clearg
cat scan 2/17/12 1 nodule lower lobe right lung 1.5cm square
Completed Provenge therapy June 1st 2012
Restarted cassodex June 5th 2012
Current age 48
Psa irrelevent
================================
greetingz
Regular Member
Date Joined Aug 2012
Total Posts : 126
Posted Today 12:32 PM (GMT -6)
With yours and HopeEvenrides comments I am thinking very seriously about Provenge right now. Thank you!
--------------------------------------------------------------------------------
61 veteran. Felt ill Jan 2012. Dx May, gastritis, heart disease. Cancer suspect.
Dx July 5 2012 Gleason 9 prostate cancer. Heart surgery denied.
Eligard and Bicalumitide. 30 days of Keto. Now Eligard only
bone mets -lymph node mets -lung mets
Lifestlye diet change
Psa Feb (4.09)-June (44.0)-July(3.07)-Oct (0.13)-Jan-2-2013(4.0)Feb-2-(8.9)feb-27-(19.9)-Mar 27-(58.8)
http://www.healingwell.com/community/default.aspx?f=35&m=2687707
Todd1963
Veteran Member
Date Joined Oct 2008
Total Posts : 1500
Posted Today 9:28 AM (GMT -6)
During the last four months I must admit I got to feeling like I was somebody special. Being treated like a rock star will do that to you. It has been fun and I hope it continues for a while. I love to share my story. I love to encourage and give hope. I have learned so much and have met so many amazing people. The last two trips I took to the manufacturing facilities wers absolutely eye opening. There are so many facets involved in the manufacturing of this vaccine. It boggles the mind. Cells are tracked and tested and retested and quality controlled from the time they are extracted up until the time they are infused. The facilities are impeccable. I would not be afraid to eat off the floor. If I could give one example of the attention to detail it would be this. The backup power system consists of four twelve cylinder diesel engines that power 480 volt 3 phase generators. The maximum window in the event of a power outage to have the backup system up and running is 30 minutes. Average time it takes in reality ( 7 seconds) Fyi one generator could power the entire facility. They have four of them. Nothing is given to chance or taken for granted. I would eat off of the diesel engines. They were spotless. I could go on and on abouut the wonders of the facilities but the most impressive faction of Dendreon is the faculty. I met person after person without exception who believe in what they are doing. From the men and women working in the labs to those who disinfect the floors and walls. Each person there puts the patient first and believes theey are making a difference in the battle we brothers face each day. Did I mention that a year later I feel fantastic. I am not a rockstar. I am not a super hero. The men and women of Dendreon are all the above. I urge myy brothers here at this forum. If you find yourselves in the class of Asymptomatic or mildly symptomatic, Metastatic, Hormone refractory, PCa, fight for Provenge first. I believe it is going to make a huge difference in the battle. I am not a Dendreon Employee. I do not own Dendreon stock. I have nothing to gain by saying this. I just believe in stating the truth when I see it. I got mine and I feel terrific. I want my brothers to get theirs as well. Todd
--------------------------------------------------------------------------------
Dx6/06 age 42 psa3216 bone mets lung mets lymph mets mass growing into bladder
Lupron/Cassodex psa dropped to <0.05 all scans clear on jan. 09
2010/2011 lupron holiday and 6 months d.e.s.
Psa rising 6/11
Bone scan 2/20/12 clearg
cat scan 2/17/12 1 nodule lower lobe right lung 1.5cm square
Completed Provenge therapy June 1st 2012
Restarted cassodex June 5th 2012
Current age 48
Psa irrelevent
Post Edited (Todd1963) : 3/30/2013 1:51:26 PM (GMT-6)
======================================
Sephie
Veteran Member
Date Joined Jun 2008
Total Posts : 1302
Posted Today 10:24 AM (GMT -6)
Todd, so happy to hear what a positive visit you had at Dendreon. I know see Provenge advertised on the TV. Though I know next to nothing about it (except what I've learned from you), it sounds like something very, very promising...not just for prostate cancer but for other cancers as well. Here's to success for you and everyone on Provenge.
PS: You sound terrific...hugs and kisses from The Empire State.
--------------------------------------------------------------------------------
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (solitary focus of posterior extraprostatic extension). Perineural tumor infiltration present. Apex margin, bladder neck and SVs negative. Final Gleason 3+4. PSA 0.0 thru July 2009. August 2009 - 0.1, September 0.3, October 0.0. All PSAs <0.1 since October 2009.
==================================
Todd1963
Veteran Member
Date Joined Oct 2008
Total Posts : 1500
Posted Today 10:43 AM (GMT -6)
Thank you Sephie. I really am doing wonderful. Sometimes it.makes me feel very sad as others are not. My heart aches for all my brothers who are fighting for their lives.. I am sure my time for that fiight will come but for now I am content to simply live mine. I was able tto meet waater guy and jnf.....Aka Terry and Jack in Atlanta and I now have two new friends for life. That was actually the best part of the Atlanta trip. I still feel like not enouugh emphasis is being given to use Provenge A.S.A.P.. after bbecoming refractory. Too many say it is too expensive. bah!!! such a bunch of crap. Add up the cost of Taxatere or zytiga or mdv over a couple years. just saying. Todd
--------------------------------------------------------------------------------
Dx6/06 age 42 psa3216 bone mets lung mets lymph mets mass growing into bladder
Lupron/Cassodex psa dropped to <0.05 all scans clear on jan. 09
2010/2011 lupron holiday and 6 months d.e.s.
Psa rising 6/11
Bone scan 2/20/12 clearg
cat scan 2/17/12 1 nodule lower lobe right lung 1.5cm square
Completed Provenge therapy June 1st 2012
Restarted cassodex June 5th 2012
Current age 48
Psa irrelevent
================================
greetingz
Regular Member
Date Joined Aug 2012
Total Posts : 126
Posted Today 12:32 PM (GMT -6)
With yours and HopeEvenrides comments I am thinking very seriously about Provenge right now. Thank you!
--------------------------------------------------------------------------------
61 veteran. Felt ill Jan 2012. Dx May, gastritis, heart disease. Cancer suspect.
Dx July 5 2012 Gleason 9 prostate cancer. Heart surgery denied.
Eligard and Bicalumitide. 30 days of Keto. Now Eligard only
bone mets -lymph node mets -lung mets
Lifestlye diet change
Psa Feb (4.09)-June (44.0)-July(3.07)-Oct (0.13)-Jan-2-2013(4.0)Feb-2-(8.9)feb-27-(19.9)-Mar 27-(58.8)